I have chronic pain and a lot of hyper mobility, my GP and physical therapist both think I might have EDS, they want me to do a genetic test, but how else do they scan for it? I'm also looking at getting a mobility aid, because the pain and locking of my joints has made it hard to move and I've missed a lot of school, so if anyone has advice on that too, it would be very welcome.
I have Elhers Danlos Syndrome (corneal and hypermobile), Selective mutism, AuDHD, POTS, vocal chord dysfunction, discalcula and dispraxia and an a ambulatory wheelchair user with a rodonkulus amount of chronic fatigue.
Since I'm still in secondary school I miss aLOT and have to deal with constant questions and people trying to use me to get out of lessons and stuff. Normally i LL make something up and say I dislocated my shoulder in a sword fight with a pirate or something but I still walk around with the constant thought of me being a burden, or maybe, subconsciously, I'm making it all up for attention, or maybe my freinds will think I have to much going on for me to be telling the truth.
These thoughts along with my worsening depression and the struggle to find the energy to get out of bed each day, are making it almost impossible to function.
If anyone here can relate I'm so sorry you are going through this shit. I'm relying on the fact it will get better but the loneliness of not being relatable to anyone is painful. Hopefully I can find those Pepole on this incredible website, Zara you are amazing ❤️
I have chronic pain and a lot of hyper mobility, my GP and physical therapist both think I might have EDS, they want me to do a genetic test, but how else do they scan for it? I'm also looking at getting a mobility aid, because the pain and locking of my joints has made it hard to move and I've missed a lot of school, so if anyone has advice on that too, it would be very welcome.
I have Elhers Danlos Syndrome (corneal and hypermobile), Selective mutism, AuDHD, POTS, vocal chord dysfunction, discalcula and dispraxia and an a ambulatory wheelchair user with a rodonkulus amount of chronic fatigue.
Since I'm still in secondary school I miss aLOT and have to deal with constant questions and people trying to use me to get out of lessons and stuff. Normally i LL make something up and say I dislocated my shoulder in a sword fight with a pirate or something but I still walk around with the constant thought of me being a burden, or maybe, subconsciously, I'm making it all up for attention, or maybe my freinds will think I have to much going on for me to be telling the truth.
These thoughts along with my worsening depression and the struggle to find the energy to get out of bed each day, are making it almost impossible to function.
If anyone here can relate I'm so sorry you are going through this shit. I'm relying on the fact it will get better but the loneliness of not being relatable to anyone is painful. Hopefully I can find those Pepole on this incredible website, Zara you are amazing ❤️